We would like to thank everyone who sponsored us for our Boxing Day Dip. We raised money for a charity that funds research into NonKetotic Hyperglycinemia. This is an extremely rare genetic condition which our six month old Daughter, Sofia, has been diagnosed with.
NonKetotic Hyperglycinemia (NKH) is life limiting and there is no cure.
We raised a total of £3457, which will be sent via a charity to Prof. Nicolas Green at UCL, Great Ormond Street, so he and his team can try and find a cure via gene therapy.
Ashley & Jonny Churchman